Skin Issues with DIPG Patients

Skin problems are common in children with DIPG and are usually related to taking steroid medicines (e.g., dexamethasone). Common skin problems include striae (stretch marks) and dry skin. In addition, some children with decreased activity and/or decreased mobility may be prone to developing pressure sores. Common places for pressure sores to develop are on the lower back, buttocks, hips, or heels. Striae can develop anywhere on the skin surface.

Some tips to help manage skin problems in your child include:

• Changing your child’s position frequently to relieve pressure on any one area (if your child’s mobility is limited).
• Bathing your child daily and looking carefully at the skin for changes.
• Using moisturizing lotions/creams. (Be careful about this if your child is receiving radiation therapy. First talk with the radiation doctors.)
• Using sunscreen (SPF 30 or higher) when outside, even if your child has a dark complexion.
• Having your child drink plenty of fluids to stay well hydrated.
• Using extra padding on the bed or wheelchair.